Our priorities

Discovery with human purpose

Research

Supporting rigorous, collaborative research that can improve life now while moving prevention, treatment, and cure closer.

In development

IDCC is building this area thoughtfully with qualified partners and people whose lives are affected by dementia.

Our approach

Purposeful work, shaped by evidence and lived experience.

Progress in dementia depends on many disciplines working together—from neuroscience and medicine to public health, caregiving, data science, and social research. It also depends on the insight and trust of people directly affected.

IDCC is building a responsible framework for research support, partnership, and public understanding. We intend to connect promising questions with collaborators, help families understand research participation, and encourage findings to move from discovery into meaningful practice.

What we will focus on

Four commitments guiding this priority.

Each focus area will be developed with clear objectives, appropriate expertise, and meaningful community input.

01

Collaborative inquiry

Connecting researchers, clinicians, care organizations, and communities around shared priorities.

02

Pilot support

Helping well-designed early-stage studies and demonstration projects build evidence for larger investment.

03

Inclusive participation

Encouraging research that reflects diverse populations and reduces barriers to informed participation.

04

Knowledge translation

Turning credible findings into clear information and practical improvements in care.

Programs we are shaping

Building the foundation before the launch.

These initiatives are planned concepts, not yet active services. Their design, timing, and scope will depend on expert review, partnerships, community input, and funding.

01

Research advisory network

A multidisciplinary group to help shape priorities, review opportunities, and uphold scientific integrity.

02

Pilot and grant framework

Transparent criteria for supporting promising, mission-aligned research.

03

Research convenings

Focused discussions that bring science, care practice, and lived experience together.

04

Clinical-trial literacy

Neutral educational resources to help families understand how research studies work and what questions to ask.

Who this work is for

Designed around people, not programs.

ResearchersUniversitiesCliniciansHealth systemsResearch fundersPeople with lived experience

Build this with us

Partnership makes the work stronger.

We are interested in relationships with research centers, universities, clinical leaders, foundations, and community partners committed to ethical, inclusive, and high-impact dementia research.

Start a conversation

Trusted starting points

Explore authoritative resources.

While IDCC develops its own reviewed materials, these public resources offer credible information and pathways for learning.

IDCC does not provide medical diagnosis or treatment. Information on this site is educational and does not replace advice from a qualified professional.